Ava Rose Redfield
5/16/17 -11/21/21
Ava’s Make-A-Wish Feature Film
Ava's Make-A-Wish journey started at one year old. We started noticing something wasn't right with her vision. Shortly after she was diagnosed with Tay-Sachs (a rare fatal genetic disease). This film documents Ava's life, diagnosis and her Make-A-Wish story.
Dedicated to Ava’s sister Reagan.
2019 National Tay-Sachs and Allied Diseases Annual Family Conference
Tay–Sachs disease is a genetic disorder that results in the destruction of nerve cells in the brain and spinal cord. The most common form is infantile Tay–Sachs disease which becomes apparent around three to six months of age, with the baby losing the ability to turn over, sit, or crawl. In America 1 out of 250 people are a carrier of the disease.
Every year NTSAD (National Tay Sachs & Allied Diseases) holds a conference for families to gather. Meeting other families to share feelings and information.
